Важным этапом в процессе лечения пациентов после трансплантации аллогенных гемопоэтических стволовых клеток (алло-ТГСК) является сохранение информированности врачей трансплантационного центра о состоянии здоровья пациента. Основой этой информированности является агрегация, систематизация и анализ данных о том, что с пациентом происходит вне стационара, а именно тех параметров, которые являются клинически важными для врачей, занимающихся трансплантацией. Основой будущей системы дистанционного мониторинга за состоянием пациентов после трансплантации является портал самонаблюдения для пациентов после алло-ТГСК. Введение в эксплуатацию этой системы уменьшит время на опрос пациента при очном обращении, а также потенциально приведёт к увеличению общей выживаемости за счёт своевременной госпитализации, что в свою очередь повысит эффективность оказания медицинской помощи.
Литература
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7. Kerbauy M.N., Kerbauy L.N., Esteves I., Rocha J.D., Stanzione R.L., Rodrigues M. et al. Hospital Length of Stay and Impact of Readmission in the First 100 Days of Allogeneic Stem Cell Transplantation: Comparison among Alternative Donor in Pediatric and Adult Population. Biol Blood Marrow Transplant [Internet]. 2018 Mar 1 [cited 2019 May 13]; 24(3): S337–8. Available from: https://linkinghub.elsevier. com/retrieve/pii/S1083879117312983.
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10. Verhoeven F., Tanja-Dijkstra K., Nijland N., Eysenbach G., van Gemert-Pijnen L. Asynchronous and synchronous teleconsultation for diabetes care: a systematic literature review. J Diabetes Sci Technol [Internet]. 2010 May 1 [cited 2019 Jul 21]; 4(3): 666–84. Available from: http://www.ncbi.nlm.nih.gov/ pubmed/20513335.
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12. Tang P.C., Overhage J.M., Chan A.S., Brown N.L., Aghighi B., Entwistle M.P. et al. Online disease management of diabetes: Engaging and Motivating Patients Online With Enhanced Resources-Diabetes (EMPOWER-D), a randomized controlled trial. J Am Med Informatics Assoc [Internet]. 2013 May 1 [cited 2019 Jul 28]; 20(3): 526–34. Available from: http://www.ncbi.nlm.nih.gov/pubmed/23171659.
13. Jonkman N.H., Westland H., Trappenburg J.CA., Groenwold R.HH., Bischoff E.WMA., Bourbeau J. et al. Do self-management interventions in COPD patients work and which patients benefit most? An individual patient data meta-analysis. Int J COPD. 2016 Aug 31; 11(1): 2063–74.
14. Shimada S.L., Allison J.J., Rosen A.K., Feng H., Houston T. Sustained use of patient portal features and improvements in diabetes physiological measures. J Med Internet Res. 2016; 18(7).
15. Tenforde M., Nowacki A., Jain A., Hickner J. The association between personal health record use and diabetes quality measures. J Gen Intern Med. 2012 Apr; 27(4): 420–4.
16. Green B.B., Cook A.J., Ralston J.D., Fishman P.A., Catz S.L., Carlson J. et al. Effectiveness of home blood pressure monitoring, web communication, and pharmacist care on hypertension control: A randomized controlled trial. JAMA – J Am Med Assoc. 2008 Jun 25; 299(24): 2857–67.
17. Caballero-Ruiz E., García-Sáez G., Rigla M., Villaplana M., Pons B., Hernando M.E. A web-based clinical decision support system for gestational diabetes: Automatic diet prescription and detection of insulin needs. Int J Med Inform. 2017 Jun 1; 102: 35–49.
2. Sureda A., Bader P., Cesaro S., Dreger P., Duarte R.F., Dufour C. et al. Indications for allo- and auto- SCT for haematological diseases, solid tumours and immune disorders: current practice in Europe, 2015. Bone Marrow Transplant [Internet]. 2015 Aug 23 [cited 2019 May 13]; 50(8): 1037–56. Available from: http://www.ncbi.nlm.nih.gov/pubmed/25798672.
3. Majhail N.S., Farnia S.H., Carpenter P.A., Champlin R.E., Crawford S., Marks D.I. et al. Indications for Autologous and Allogeneic Hematopoietic Cell Transplantation: Guidelines from the American Society for Blood and Marrow Transplantation. Biol Blood Marrow Transplant [Internet]. 2015 Nov [cited 2019 May 13];21(11):1863–9. Available from: http://www.ncbi.nlm.nih.gov/pubmed/26256941.
4. Passweg J.R., Baldomero H., Basak G.W., Chabannon C., Corbacioglu S., Duarte R. et al. The EBMT activity survey report 2017: a focus on allogeneic HCT for nonmalignant indications and on the use of non-HCT cell therapies. Bone Marrow Transplant [Internet]. 2019 Feb 6 [cited 2019 May 13]; Available from: http://www.ncbi.nlm.nih.gov/pubmed/30728439.
5. Broder M.S., Quock T.P., Chang E., Reddy S.R., Agarwal-Hashmi R., Arai S. et al. The Cost of Hematopoietic Stem-Cell Transplantation in the United States. Am Heal drug benefits [Internet]. 2017 Oct [cited 2019 May 13]; 10(7): 366–74. Available from: http://www.ncbi.nlm.nih.gov/pubmed/29263771.
6. Jencks S.F., Williams M.V., Coleman E.A. Rehospitalizations among Patients in the Medicare Fee-for- Service Program. N Engl J Med [Internet]. 2009 Apr 2 [cited 2019 May 20]; 360(14): 1418–28. Available from: http://www.ncbi.nlm.nih.gov/pubmed/19339721.
7. Kerbauy M.N., Kerbauy L.N., Esteves I., Rocha J.D., Stanzione R.L., Rodrigues M. et al. Hospital Length of Stay and Impact of Readmission in the First 100 Days of Allogeneic Stem Cell Transplantation: Comparison among Alternative Donor in Pediatric and Adult Population. Biol Blood Marrow Transplant [Internet]. 2018 Mar 1 [cited 2019 May 13]; 24(3): S337–8. Available from: https://linkinghub.elsevier. com/retrieve/pii/S1083879117312983.
8. Baker A. Book: Crossing the Quality Chasm: A New Health System for the 21st Century. BMJ [Internet]. 2001 Nov 17 [cited 2019 Jul 21]; 323(7322): 1192–1192. Available from: http://www.bmj.com/cgi/ doi/10.1136/bmj.323.7322.1192.
9. Krishna S., Boren S.A. Diabetes self-management care via cell phone: a systematic review. J Diabetes Sci Technol [Internet]. 2008 May [cited 2019 Jul 21]; 2(3): 509–17. Available from: http://www.ncbi.nlm. nih.gov/pubmed/19885219.
10. Verhoeven F., Tanja-Dijkstra K., Nijland N., Eysenbach G., van Gemert-Pijnen L. Asynchronous and synchronous teleconsultation for diabetes care: a systematic literature review. J Diabetes Sci Technol [Internet]. 2010 May 1 [cited 2019 Jul 21]; 4(3): 666–84. Available from: http://www.ncbi.nlm.nih.gov/ pubmed/20513335.
11. Osborn C.Y., Mayberry L.S., Mulvaney S.A., Hess R. Patient web portals to improve diabetes outcomes: a systematic review. Curr Diab Rep [Internet]. 2010 Dec [cited 2019 Jul 17]; 10(6): 422–35. Available from: http://www.ncbi.nlm.nih.gov/pubmed/20890688.
12. Tang P.C., Overhage J.M., Chan A.S., Brown N.L., Aghighi B., Entwistle M.P. et al. Online disease management of diabetes: Engaging and Motivating Patients Online With Enhanced Resources-Diabetes (EMPOWER-D), a randomized controlled trial. J Am Med Informatics Assoc [Internet]. 2013 May 1 [cited 2019 Jul 28]; 20(3): 526–34. Available from: http://www.ncbi.nlm.nih.gov/pubmed/23171659.
13. Jonkman N.H., Westland H., Trappenburg J.CA., Groenwold R.HH., Bischoff E.WMA., Bourbeau J. et al. Do self-management interventions in COPD patients work and which patients benefit most? An individual patient data meta-analysis. Int J COPD. 2016 Aug 31; 11(1): 2063–74.
14. Shimada S.L., Allison J.J., Rosen A.K., Feng H., Houston T. Sustained use of patient portal features and improvements in diabetes physiological measures. J Med Internet Res. 2016; 18(7).
15. Tenforde M., Nowacki A., Jain A., Hickner J. The association between personal health record use and diabetes quality measures. J Gen Intern Med. 2012 Apr; 27(4): 420–4.
16. Green B.B., Cook A.J., Ralston J.D., Fishman P.A., Catz S.L., Carlson J. et al. Effectiveness of home blood pressure monitoring, web communication, and pharmacist care on hypertension control: A randomized controlled trial. JAMA – J Am Med Assoc. 2008 Jun 25; 299(24): 2857–67.
17. Caballero-Ruiz E., García-Sáez G., Rigla M., Villaplana M., Pons B., Hernando M.E. A web-based clinical decision support system for gestational diabetes: Automatic diet prescription and detection of insulin needs. Int J Med Inform. 2017 Jun 1; 102: 35–49.
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